Home
Focus Areas
About Us
"There's no choice between watching your child die young or pursuing a potentially revolutionary treatment," writes a mother whose 6-year-old son has Duchenne muscular dystrophy, a degenerative genetic disease that, until recently, guaranteed death by early adulthood from cardiac or respiratory failure.
"For parents of boys with Duchenne, dystrophin is our white whale, the life-or-death imperative no parenting manual can prepare you for."
So when her son qualified for a clinical trial of a gene therapy that introduces a smaller, functional form of the dystrophin gene, she and her husband "did not think twice."
The gene therapy, called eteplirsen, was approved by the FDA in 2016 and has since been shown to increase life span by about 20%, about five years longer than the average Duchenne patient.
"It demonstrates that a small amount of supplemental dystrophinjust 0.9% with eteplirsencan meaningfully lengthen lives," writes Erin Gloria Ryan in an op-ed for the Washington Post.
"Families know what those added years represent: more celebrations, more laughs, more stories."
But she also writes about the "arbitrary restrictions on approval of this gene therapy" that are keeping many families from
Selected Grant News Headlines
A customized collection of grant news from foundations and the federal government from around the Web.
The Weeknd was awarded the Key to the City and honoured with The Weeknd Weekend by the City of Toronto.The ceremony was attended by Toronto Mayor Olivia Chow, youth from the Boys & Girls Club of West...more
The initiative saw ZTE donate essential supplies and digital connectivity solutions worth 1 million THB to a Public charity organization, Baan Nokkamin Foundation.This foundation provides foster...more
13-year-old Ricky was diagnosed with leukemia for the second time in his young life.Traditional medications were failing, and Ricky's doctor dismissed the recently approved stem cell treatments...more
Notably, this was the first Children's Entrepreneur Market event held in the country.HATCH Fest honored Juneteenth with three public readings of the Emancipation Proclamation by local community...more
Sit Still Kids Salon Opens in Atlanta's Peachtree Battle neighborhood.Salons specifically designed for children are evolving to provide tailored services for kids with diverse needs.Businesses are...more
Debit cards issued by NYC's summer youth job program tied to $17 M ATM fraud scam: sources.The scam led to ATMS across the Big Apple being banged for big bucks from July 11-13.The cash ended up in...more
The passing of my father was a transformative moment for me.This perspective shift is why I now dedicate much of my energy to youth programs and community development.I've leaned heavily on...more
Dobbs announced the need for volunteers at the Central Arkansas Veterans Healthcare System for Compassionate Contact Corps.Volunteers are matched with veterans that are experiencing loneliness or are...more
Jefferson Parish Young Marines receive national honors.Sgt.Taylor Science and Technology Academy, was named the Honor Graduate for the Young Marines 2025 National Leadership Academy-Senior Leadership...more
Monterey County Workforce Development Board Green Cadre program receives $2M state grant.Program will provide up to 90 young adults, between the ages of 18 and 30, with paid job training, work...more
Youth News from...
Community Foundation of Abilene
New York Community Trust
Coastal Community Foundation
San Diego Foundation
Community Foundation of Sarasota County
Manatee Community Foundation
Bloomberg Philanthropies
Delaware Community Foundation
Kern Community Foundation
Key Biscayne Community Foundation
Social Entrepreneurship
Spotlight
When it Comes to Social Enterprises, Failure is the Best Platform for Innovation
In the world of social enterprises, failure is a cringe-worthy moment nobody wants to talk about. But, social entrepreneurs can benefit from their failures.
